Research Program Manager for Nonprofit Disease Foundation

Jain Foundation

Seattle, WA

Job posting number: #7081378

Posted: July 20, 2021

Application Deadline: Open Until Filled

Job Description

Employer: Jain Foundation Inc.
Location: Seattle, WA
Job type: Full time

The Jain Foundation Inc. is a private non-profit with a mission of finding a therapy or cure for Dysferlinopathy, a form of muscular dystrophy that includes the clinical presentations, Limb Girdle Muscular Dystrophy Type 2B/R2 (LGMD2B/R2) and Miyoshi Myopathy type 1. The Jain Foundation solicits, evaluates, manages and awards research contracts to research scientists, CROs, and bio-tech/pharmaceutical companies for projects related to dysferlinopathy, organizes scientific conferences and webinars specifically on this disease, provides diagnostic advice and support to individuals with dysferlinopathy, and supports the planning and recruitment for clinical studies and trials.

Please visit the Jain Foundation website for more information about our programs and operations: www.jain-foundation.org

Job description:
The Research Program Manager (RPM) will report directly to the Co-Presidents of the Foundation and will work closely with the other Jain Foundation members to develop and supervise a portfolio of complex projects and patient programs related to dysferlinopathy. The RPM will also have the opportunity to interact and work with leading scientists in the dysferlin field and contribute to the strategic direction of the Foundation.

Specific Responsibilities:

- Develop and solicit relevant proposals that meet strategic objectives
- Identify new research avenues and explore areas of strategic interest
- Be a partner and resource to funded scientists and facilitate accomplishment of project objectives
- Contribute to in-depth evaluation of proposals and write summaries
- Aid in monitoring and evaluating the progress of funded projects towards identified milestones
- Provide recommendations for initiating or renewing funding of projects
- Conduct site visits, provide technical guidance, mediate collaborations and develop lab tools
- Prepare project status reports and evaluations
- Keep up to date on relevant research through regular literature review and attending conferences

Qualifications:
- PhD or equivalent in biological sciences is required. Knowledge in the muscular dystrophy field desired
- Applicants just completing PhD will be considered; however, 1-3 years of postdoc experience or equivalent preferred.
- Rare disease research experience desired
- Ability to think critically and creatively about research projects and their relevance to human disease
- Exceptional writing and communication skills
- Ability to work in a cooperative, collegial manner with like minded scientists, as part of a small team
- Ability to interact with research scientists at all levels of the career spectrum
- Capacity to take a stand on research directions that are optimal to the goals of the Foundation
- Ability to organize/prioritize work and meet deadlines in a fast paced environment with multiple, competing demands
- Able and willing to travel domestically and internationally (approximately 8% travel)
- Scope of work will require residency or relocation to Seattle, Washington area

The candidate should have a passion for medical discovery and a deep sense of compassion for patients who suffer from rare diseases that do not have cures.

Benefits:
- Competitive salary based on experience
- Paid vacation and sick leave
- Retirement benefits
- Relocation expenses (if applicable)

Application procedure: Please send all of the following to the attention of Dr. Laura Rufibach and Dr. Doug Albrecht, Co-Presidents of the Jain Foundation – applications missing any of these items WILL NOT be reviewed:

- Detailed resume listing qualifications, education, and employment history
- Cover letter detailing why you are interested in this position and how your qualifications meet the Foundation’s needs
- Names and contact information of three references
- 1-2 page answer to the following question. “Orphan diseases face many challenges. Name three of these challenges and suggest ways a foundation could help overcome them.” We are looking for a well-organized and to-the-point write-up demonstrating good writing skills and thoughtful answers.

Email: admin@jain-foundation.org – in the subject line put “Research Program Manager”




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